bookmark_borderThe worst sensory experience of my life

On Saturday night, I endured the worst sensory experience of my life.

I was walking to the train station from work, and out of nowhere I was attacked by the worst wind imaginable. Wind so horrendous that I don’t even think the word “wind” is adequate to characterize it. It attacked me with a viciousness and brutality so severe that it felt like sharp claws ripping and tearing at my clothing and skin. It felt like being stabbed by a million icy cold knives, my skin shredded to pieces. I was in such atrocious pain that I was literally screaming in agony while I sprinted down the block to the train station. (There were a few people out and about who almost certainly thought I was insane; I’m lucky that no one called the cops.)

It was torture.

In my opinion, weather is simply not supposed to be the way it was during that torturous walk. Obviously, part of existing on earth is the fact that on different days, you get different types of weather. There are warm days, cold days, sunny days, cloudy days, rainy days, and, yes, windy days. But this was not merely a windy day. This was an abomination. Air is simply not supposed to act like this.

The wind was so bad, in fact, that even inside the train station, even after I had angrily stomped up the stairs to the second level of the station, ice cold wind was still blowing through the train station.

The experience was so horrific that even hours after returning home, I could not recover. No amount of being inside a warm, wind-free house, or drinking hot tea, could help me to feel better. The only thing I wanted was to scream and scream and scream at the top of my lungs, and to smash every building on that evil block into pieces until all of the apartments and all of the storefronts were reduced to a heap of rubble.

The experience itself lasted only a minute or so, because I was only a block away from the train station when I was assaulted by the abominable wind, but I could not get it out of my brain. I re-experienced it again and again while I was lying in bed, trying futilely to fall asleep. The sensation of the wind ripping and tearing at my face and neck, and buffeting and battering my body, is permanently etched into my consciousness.

As an autistic person, sensory sensitivities (finding certain sensory experiences unpleasant, distressing, and even painful, which most people are not bothered by) are a big part of my life.

As you may have guessed, wind is my biggest sensory sensitivity. Noise is one as well, particularly sudden noises that come out of nowhere. Light is another, particularly when it is at the wrong angle, shining directly into my eyes.

Obviously, although most people would likely not enjoy spending time in such strong wind, my autism is why the wind felt so incredibly distressing and painful to me.

I am certain that if other people experienced what I did during that horrible walk, avoiding creating the conditions that cause such strong gusts of wind would be the number one priority of every city and town government, every architectural firm, and every civil engineering department. If other people experienced what I did, they would do whatever it took to prevent such an experience from happening to another person ever again. Even if that meant demolishing buildings and rebuilding them in a different place. Even if it meant razing entire city blocks and entire neighborhoods.

But other people do not experience what I do.

So I’ve been thinking about steps that I could take to decrease the odds of having a repeat of this experience. As I’ve embraced my autistic identity more and more, I’ve been thinking about ways to accommodate my sensory sensitivities, ways to avoid being subjected to the things that cause me discomfort and distress, ways to hopefully allow me to have a better quality of life.

The autistic community is pretty much in agreement that sensory sensitivities do not diminish with repeated exposure. Autistic people can’t “get used to” the things that bother us, or learn to tolerate them over time. If anything, it’s the opposite: the more we are exposed to something that bothers our sensory sensitivities, the more it bothers us.

Wind is a difficult thing to avoid, however.

It is impossible to predict with any degree of certainty whether any particular street or block will be particularly windy at any particular time. Yes, some streets are more predisposed to wind than others, but on the Saturday night from hell, a street that has frequently had terrible wind in the past was fine, while the abomination happened on a street that has never been a problem, wind-wise, before. I could choose a route to the train station that avoids both of these streets, but there’s no guarantee that a different street won’t randomly happen to have terrible wind.

Because wind is just that – random. I’m sure there are scientific laws that explain why some places tend to be more windy than others (I’m not a scientist, so I don’t know the details), but any prediction is inexact and uncertain. I check my weather app each morning, but it is an imprecise guide. There have been days when the app shows a wind warning and/or an icon signifying strong wind, but once outside I don’t find the wind to be particularly bad. Conversely, there have also been days with no wind warning and no icon, on which I nonetheless find the wind to be absolutely awful.

Clothing such as scarves, down parkas, and hats with ear flaps help, but don’t prevent suffering entirely when the wind is really bad. It’s also not really socially acceptable to wear such clothing in spring, and wind can really bother me in that season as well, even though the temperature is not as cold.

I could take Uber or Lyft to and from work to minimize my amount of walking, but that would be much more expensive than the train, and I also enjoy riding the train much more than I enjoy being in a car one-on-one with another person, with whom I feel obligated to make small talk.

I could buy a car (something that I don’t currently own) and drive everywhere that I need to go as opposed to taking public transportation or walking, but that would be quite expensive as well. Plus, there’d still be a chance of getting attacked by a gust of wind in the parking lot.

The only way to avoid wind entirely is to never leave one’s house, and that is neither a practical option nor a desirable one. I wouldn’t be able to work, for starters, at least not at my current job. Plus, I really enjoy running errands such as going to the post office, bank, convenience store, and grocery store. I also enjoy walking around in both natural and urban environments and taking photos of the things that I see. And walking is good exercise, which is valuable as well.

Having said all of that, I am trying to manage risks wisely and minimize exposure to the things that bother my sensory sensitivities when it makes sense to do so.

Yesterday, for example, with Saturday’s abomination still fresh in my mind, I decided to take the bus to the downtown area to buy face cream at the drug store, deposit my paycheck, and get a coffee at Dunkin. Normally I would walk, but as I was about to leave my house, I realized that the bus was due to come soon, and I was able to catch it without waiting a long time. The timing of my errands worked out so that I was able to easily take the bus back home as well. All in all, I was able to complete the tasks I needed to do, walk around the downtown and observe all the goings-on there, and snap a few photos of the bright and snowy day, without being subjected to significant wind.

While wind (like noise or light) is impossible to entirely avoid or accurately predict, I am learning that there are measures that I can take to minimize my exposure. Gradually, I am finding ways to enjoy the activities that are important to me without being subjected to unnecessary distress from my sensory environment.

bookmark_borderReflections on the past few years…

As the year 2024 begins, I am going to get a bit introspective and take a look back on the past few years…

2020 was, frankly, the worst year of my life. I didn’t share the extent of my struggles at the time, but the events going on in the world – the Covid pandemic and the policies implemented in response to it, the 2020 election, and the protests that resulted in statues being removed and torn down – really negatively impacted my mental health. Particularly the statues. For reasons that are difficult to explain, I couldn’t stop thinking about them. I was extraordinarily angry and sad about what had happened, and it affected work, friendships, hobbies, and every area of my life. No one understood why I felt so strongly about metal and stone sculptures. I felt alone, I felt unheard, and I felt powerless to change anything.

2021 was a difficult year as well. The horrible things happening to the statues continued, as did the pandemic and the authoritarian actions taken in response to it. Feeling that I needed a major change in my life, I left my job and started a completely different one, which came with mixed emotions. I did experience some glimmers of hope, however: I connected with fellow Italian Americans who share my love of Christopher Columbus, and while scrolling through social media, I discovered an opportunity to put up my very own statue.

2022 was a year of ups and downs. I struggled with finding the time and energy to do the things I wanted to do, as well as with striking the right balance between speaking out about my beliefs but not wanting to be so controversial that I would lose friends and opportunities. Overall this was a year in which I became more active in expressing my views, honoring the historical figures who are so important to me, and trying to make a difference. I began sharing my artwork publicly and selling it at local fairs and festivals. Most importantly, Stonewall Jackson came into existence and came to live in my yard, which I consider to be the most significant accomplishment in my life.

In 2023, I continued to make progress on my journey of healing and finding my place in the world as an authentic person. Stonewall Jackson was by my side, experiencing all the seasons of Massachusetts and celebrating all of the holidays with me. Additionally, Christopher Columbus got his head re-attached to his body and returned to view, although not in the way that would have been ideal. Many people don’t understand why someone with a degree from Harvard would want to work at a grocery store. Many people don’t understand why someone would care so much about statues and be affected so strongly by what happens to them. My way of seeing the world is different from most people’s, and that is OK.

In 2024, I hope to continue expressing myself through drawing and writing, and I hope to incorporate the historical figures that I love into my life as much as possible.

Cheers to 2024!

bookmark_borderJoy amidst darkness

This holiday season has been one of contradictions. Darkness and light, hope and despair, joy and pain.

A few days before Christmas, the bullies whose goal is to eliminate from the world everything that makes life worth living struck again, inflicting horrific and agonizing pain. Like so many other places and things in the United States, Arlington National Cemetery has been transformed into something sickening, disgusting, and horrific. It has become yet another symbol of me being rejected, excluded, and hurt, yet another reminder of the atrocities that have taken place, yet another trigger of grief and rage so strong that I feel sick to my stomach at the mere mention of its name. Arlington has been transformed by bigotry and intolerance, from a cemetery honoring the dead into a shrine to sameness, compliance, and conformity. Where a cemetery is supposed to be, there is now nothing but a hideous scar in the world. Arlington is yet another place that has been physically transformed, using cranes and work crews at taxpayer expense, to ensure that people like me do not feel welcome there. To ensure that autistic people, rebels, people who think differently, people who are different from the norm in any way, will feel rejected and excluded. The fact that anyone would think that this is a good thing to do is incomprehensible and unimaginable.

And just a couple of days after Christmas, on December 27, the bullies inflicted horrific and agonizing pain yet again, this time in Jacksonville, Florida. At the orders of the bully who was elected mayor, Donna Deegan, a monument honoring the women of the Confederacy was obliterated from a city park, a park which, by the way, had been known as Confederate Park, but of course Deegan ordered that name to be obliterated too. Because God forbid that anyone who is different from the majority in any way be allowed to exist. God forbid that anyone unique or different be honored in any way. Only people like Donna Deegan matter, apparently, and no one else. No one else’s feelings or perspectives matter. Only hers.

Just like the kids who bullied me when I was growing up, the kids who wore makeup, highlighted their hair, spoke using the latest slang, dressed in the latest fashions, listened to whatever music was popular at the time, watched whatever TV shows were considered “cool,” and IM’d with their friends after school instead of reading about and drawing historical figures. They are the only people who matter, apparently, and no one else. No one cares about my feelings or my perspective. No one cares about my right to exist. They only care about themselves and the people who look like them, talk like them, act like them, and think like them. In their eyes, no one else matters.

The atrocity, which cost $187,000, was funded by a grant from an organization called the Jessie Ball duPont Fund (source here). Which means that yes, people actually donated money to inflict horrific and agonizing pain on other people. People actually donated money for the purpose of destroying everything that makes life worth living. The fact that someone would donate money to such a cause is incomprehensible, unimaginable, and utterly sickening.

Statues and monuments were the only thing in our society that actually reflected my perspective and my values, that actually made me feel represented and included. So of course, they had to go. Of course, they had to be destroyed. Of course, it was deemed unacceptable for me to feel even the tiniest bit represented or included. Apparently, it wasn’t enough for the makeup-wearing, IM-ing, mindless conformists to control the media, the economy, pop culture, fashion, technology, etiquette, and social norms. They also had to take away the one thing that actually reflected my values and not theirs, the one thing that was beautiful to me, the one thing that made my life worth living. They had to turn statues and monuments into yet another thing representing their own values, yet another thing to make me feel condemned, rejected, and excluded, yet another cudgel to beat me with.

Society decided that because I am different from the majority, I deserve the death penalty.

That is what the Biden administration’s Department of Defense did at Arlington National Cemetery.

And that is what Donna Deegan did in Jacksonville, Florida.

Anyway, I digress.

Suffice it to say that each time a new atrocity occurs, I am assaulted by pain so horrific and agonizing that it cannot be described in words. Each new atrocity brings with it the pain of all the previous ones, and I am buried beneath the avalanche of atrocities. I am crushed by the weight of the pile, as if I will never be able to dig my way out. I feel as if I’ve been swept away by a tidal wave, lost in a vast sea of atrocities, directionless, as if I will never find my way back to shore.

It is difficult to see any purpose in celebrating the holidays given the vast and ever-growing mountain of atrocities. Putting up a Christmas tree, looking at beautiful lights, playing Christmas music, baking, buying festive foods, all these activities seem insensitive, superficial, tone-deaf. When the tidal wave of atrocities attacks, I hate the entire society. Because this society, as a whole, allowed the atrocities to happen. This society has decided that the destruction of everything that makes my life worth living is somehow an acceptable outcome, that there is no need to stop it, to reverse it, to condemn it, or to do anything about it. And because every person, every organization, and every company are part of the society, every possible way of celebrating the holidays is to some extent “contaminated.” When the pain is at its strongest, and my mood at its darkest, it seems that to celebrate the holidays would be to condone the atrocities.

Yet I decided to try, anyway.

Not because I condone the atrocities. Not because I wish to “move on,” or take my mind off of what happened, or dedicate my time and energy to something else, or find a new thing to be interested in.

But rather because I believe that I am a good person, and that I deserve to have joy in my life. I believe that the historical figures would want me to feel joy. Without joy, it would be impossible to summon the will to keep fighting. Just as the Confederate soldiers found ways to celebrate Christmas as best as they could, despite being exhausted and starving, missing their homes, shivering in their threadbare uniforms, suffering from illnesses and injuries, and traumatized from horrific battles, I celebrated as best as I could.

Of course, I wish to eventually heal from the horrific and agonizing pain that has been inflicted. (No person wants to experience horrific and agonizing pain.) And I believe that over the past couple of years, I have made slow and halting progress in doing so. But the healing does not consist of “moving on,” and it certainly does not consist of forgiving the perpetrators. Rather, healing consists of centering my life around the historical figures, doing whatever I can to honor them and keep them alive, incorporating them into everything that I do, and finding joy in them.

Over the course of the holiday season, my soul vacillated between these two states: being engulfed by horror and despair on the one hand, and experiencing rays of hope, joy, and even excitement on the other.

I tried to spend my holiday season doing things that I truly wanted, as opposed to things that I felt obligated to do. Some of these activities didn’t have anything to do with historical figures, but most did. Historical figures are the thing that I love more than anything else in the world, after all, and so it makes sense that most of the things that bring me joy would include them. So, after this long and rambling introduction, here are a few of the things that I did to celebrate during the holiday season:

Buying and setting up a Christmas tree and decorating it with ornaments honoring some of my favorite historical figures.






Putting up Christmas lights on the front of my house…

And in the back of my house, where Stonewall Jackson lives.

Sending out Christmas cards

Buying some festive foods from Trader Joe’s

Visiting the Christmas tree at the pond near my house…

… and the World War I memorial, which was decorated for Christmas.

Checking out the Christmas lights at Assembly Row, the area where I work…

… and going to an ice sculpture walk, also at Assembly Row.

Looking at Christmas decorations in Boston, paying a visit to Christopher Columbus, and giving him a little gift.

Eating Chinese food

Visiting a house with amazing Christmas lights

Making cinnamon bun pancakes

Making photo calendars to give as Christmas gifts (including, of course, a couple of my favorite statues)

Asking for toy soldiers as Christmas gifts…

… and receiving several other gifts as well, such as Confederate coffee, a Christopher Columbus teacup, and a necklace with a locket containing pictures of historical figures inside!

Finally, I spent Christmas night sitting on my couch, writing while watching a football game. The lights of my Christmas tree, with historical figure ornaments hanging from its branches, twinkled softly in the background, and the calming pine scent filled the living room. Although sports are something that can go either way for me regarding being “contaminated” by the statue genocide, I really enjoyed watching the game, particularly the interviews and the festive montages that played during it. Spending Christmas night with only my historical figures for company might strike some people as sad or pathetic, but for me, it brought a sense of peace and Christmas spirit that was exactly what I needed.

Here’s to more joy, more peace, and more historical figures in 2024.

bookmark_borderA Christmas gift for Christopher Columbus

It was December 23, and the North End of Boston was filled with Christmas cheer. Lights twinkled on the trees, and the cafes and restaurants were adorned with wreaths and garlands. 

People hustled and bustled through the narrow streets and lined up outside Modern Pastry and Neptune Oyster in search of goodies for their Christmas feasts. Car horns honked impatiently. Tourists chattered excitedly in various languages and stopped to snap pictures. 

The only person seemingly left out of the festivities was Christopher Columbus. A narrow alley off of bustling Salem Street, deserted except for a few parked cars and an abandoned mattress, led to his home in the parking lot of the Knights of Columbus headquarters. As always, he stood solemnly atop his modest pedestal, isolated behind a tall fence. 

Merry Christmas, Chris. How have you been? Everything is so cheerful out there, with the lights, and the decorations, and everyone buying food and presents. And you are here all by yourself. Nobody seems to care about you out there, but I do. You have no decorations, and no presents, and no family, and no one coming to visit you. But I’m here to visit you. I didn’t forget. 

I stood for a few moments with my friend Chris, separated from him by the fence.

And then I noticed that the gate behind him, on the other side of the parking lot, was open. 

And an idea came into my mind.

Perhaps Chris could receive a gift after all. 

I didn’t know for how much longer the gate would be open, so I had to hurry. I turned back onto Salem Street and, turning my head to the left and to the right, began scanning the storefronts for one that might sell suitable gifts for a marble statue. I remembered passing by a CVS earlier, shortly after getting off of the train. So, battling through the crowds, I retraced my steps. Once inside the cramped drug store, I found myself surrounded by an overwhelming assortment of candy, stockings, toys, and holiday decorations. What would Chrisopher Columbus like? I asked myself as shoppers flowed around me, checking out the merchandise, and the automatic doors noisily clanged open and closed. A statue cannot eat, so candy was out. The toys all seemed too juvenile and silly for a great admiral. I noticed a table filled with bouquets of flowers, which were beautiful but very expensive, and likely too big to rest securely atop Chris’s small pedestal. And then I noticed that next to the flowers were some small plants, with beautiful white flowers, that cost only $7. 

The perfect gift for Chris!

I paid for a plant and, praying that the gate hadn’t closed, carried it carefully through the busy streets. 

To my tremendous relief, the gate was open, allowing me to stroll into the parking lot and present the admiral with his gift. A sign sternly warned me that trespassing is forbidden and that violators will be prosecuted, but I ignored it, figuring that no one would mind, because after all, I was there to give the statue a gift, not to harm him. I gently placed the little plant between his marble feet. 

Merry Christmas, my friend. I brought you a gift after all. I hope you like it. 

I took a few photos of him with his gift, patted his foot, and bid him farewell. 

See you later, Chris. It’s been wonderful to see you, as always. Until next time…

bookmark_borderMasking is not a privilege

I’ve seen several posts on social media lately claiming that masking is a privilege.

For those who aren’t super familiar with the world of autism, masking is the ability of an autistic person to essentially “pass” as neurotypical – to copy the mannerisms, slang, body language, and communication styles of the people around them in order to fit in and to avoid attracting negative attention.

Masking is something I’ve done for as long as I can remember, way before I began to consider myself an autistic person in my late teens, and way before I received a formal diagnosis at age 26. 

For me, masking is not an ability that I can choose to deploy in certain situations, while refraining from using it in others. This is because, for as long as I can remember, I’ve had something that I refer to as shyness. Shyness, for me, is a disability that makes it impossible for me to be my authentic self when I am around other people. It prevents me from expressing any opinion that the people around me are likely to disagree with, saying anything that the people around me would not expect me to say, or doing anything that the people around me are likely to find weird, strange, or bad in any way. Shyness is not mere social anxiety; it is much more severe and debilitating. I am not merely afraid to do the aforementioned things, or anxious about doing them, or worried about what the consequences would be if I did them. It is literally impossible for me to do them. I physically cannot force myself to, no matter how hard I try, and no matter how strongly I feel that doing the things would logically be the best option in the situation.

What does this have to do with masking? 

Shyness, essentially, is the same thing as masking. Or, to be exact, shyness is what causes / motivates the masking. Shyness is the thing that forces me to mask all the time. Because of my shyness, not only do I have the ability to mask, but I also have the inability to not mask. I cannot turn the masking off, no matter how badly I want to. 

In case you are wondering how a person could come to have shyness, I am not 100% sure, because I have had it for as long as I can remember. But my guess is that it resulted from one or multiple negative social experiences I had at a very young age, perhaps situations in which I received unexpected negative reactions from other people when doing things that I thought were completely innocuous. When one thinks about it this way, it becomes clear that shyness is actually a form of PTSD. Although the negative experiences that caused it were not life-threatening, my nervous system reacted as if they were, and these same emotions are activated each time I am in a social situation. In other words, every social situation that I encounter, triggers the PTSD. Every social situation triggers flashbacks of the traumatizing events that caused the shyness. The flashbacks don’t take the form of visual and auditory hallucinations of the traumatic events, as is commonly associated with PTSD. Instead, they take the form of re-experiencing the emotions from the traumatic events. My nervous system believes that I will die if I do anything that will be perceived as weird, unexpected, or bad in the eyes of the people around me. Therefore, I am unable to do these things, no matter how certain my logical brain is that I will not actually die or, in some cases, that doing the things is actually the best option in the situation.

The shyness has had a profound negative impact on my life. There are numerous jobs that I cannot do because of the interpersonal interaction required. If a restaurant messes up my order, a service provider gives me a surprisingly high bill, or a store overcharges me, I’m not able to say anything. I’m not able to negotiate with merchants or vendors to try to get a lower price. I’m not able to say no to salespeople who try to pressure me into buying things. If I’m having a problem, I’m not able to ask for help. If I don’t understand something, I’m not able to ask questions. If someone asks me to do something I don’t want to do, I’m not able to say that I don’t want to do it, and usually end up having no choice but to do the thing and pretend to be happy while doing so. The medical system is a nightmare, as I’m not able to say no to examinations, tests, and medical procedures that I don’t want. Perhaps most significantly, for my entire life, neither friendships nor social relationships of any kind have ever brought me the slightest amount of enjoyment, pleasure, or happiness. Social activities are, and have always been, an unpleasant chore, a task that needs to be completed before I can have time to do the things that I actually enjoy. Yet whenever someone asks me to do an activity with them, I have to say yes, resulting in my entire schedule being consumed by get-togethers that I do not look forward to and get no enjoyment out of, with no time or energy for the hobbies and interests that make my life worth living.

Many of the autistic content creators on social media who allege that masking is a privilege, also speak about partners, spouses, children, and close friends whose company they enjoy and with whom they feel truly relaxed and safe to unmask. 

Due to my shyness, all of these things are complete non-starters for me. The entire concept of a friend whose company I enjoy is a contradiction in terms. I only feel truly relaxed and able to unmask when I am by myself, or with my statues. (And then I am ridiculed, and called a white supremacist, for my love of statues.) Living with another person, as presumably those with partners, spouses, and/or children do, would be so intolerable to me that I would probably commit suicide if I had to do it for more than a couple of weeks.

Given my experiences with shyness, it is appalling that someone would claim that masking is a privilege. 

Those who claim that masking is a privilege characterize it as a tool, an ability. People who have a tool or ability at their disposal, the logic goes, are privileged compared to those who lack that tool or ability. But for a person with shyness, masking is not something that can be turned on or off, depending on what makes sense in the situation. Masking is not something that can be deployed when necessary or advantageous, and left on the shelf when not needed. Due to my shyness, masking is something that I do all the time. There is no choice. It is automatic. It cannot be turned off.

If anything, it is those without the ability to mask who are privileged. After all, it is such people who are recognized by society as being disabled, and who therefore qualify for the programs, funding, support, and accommodations that people with disabilities are entitled to receive. As a person with shyness, I am not able to act in a way that would reveal my disability. I am not able to tell or show others when I am suffering, when I am having difficulties, or when I am struggling with something. My shyness prevents me from asking for support or accommodations, let alone receiving them. Additionally, if someone is unable to mask, that means that they have no choice but to be their authentic self in every situation. This might be disadvantageous in some contexts, but it also means that if they are accepted by others, they are being accepted as their true self. For me, on the other hand, it is impossible to show my authentic self to others, completely foreclosing any possibility of my true self being accepted.

Whereas some people lack the ability to mask, I lack the ability not to. If I am privileged for having an ability that others do not, then by the same logic, people who are able to take their mask off are privileged compared to me, because they have an ability that I do not. 

In the posts claiming that the manifestation of my PTSD is somehow a privilege, I am implored to put aside my own feelings and thoughts and instead to listen to those who are allegedly less fortunate than myself. But by the same logic, those whose disabilities are more visible than mine, and who therefore do not have shyness, should be implored to put aside their feelings and thoughts in order to listen to mine. What makes people with visible disabilities so inherently superior to me that being a decent person requires me to put aside my own perspective and instead focus on theirs? Why are their perspectives inherently valid, while mine is inherently not? Why are their voices considered worthy of “centering” and “amplifying,” while my voice is considered worthy only of being dismissed? 

Yes, people with more visible disabilities, and more substantial support needs, face challenges that I do not. But as a person with shyness, and a person who has always been held to the same standards as a neurotypical person because I have always been perceived as one, I also face challenges that they do not. I don’t understand why this is considered a controversial concept. 

I have always been opposed to the entire concept of privilege. But when multiple people are claiming that a debilitating form of PTSD is a privilege, it is clear that things have reached new levels of absurdity. The concept of privilege has gone way too far and needs to be challenged and spoken out against. Privilege is a concept whose only purpose is to hurt people, to invalidate their perspectives, and to dismiss their suffering. 

bookmark_borderMy recent experience with autistic burnout

For nearly four years, I’ve been experiencing autistic burnout. I’ve been trying – with some degree of success – to make changes to my life in order to recover from this burnout, but a complete recovery still remains elusive. The burnout has been hitting really hard over the past couple of weeks.

Unlike in previous years, when the statue genocide has made me so disillusioned with the entire society that participating in its traditions has seemed vapid and pointless, there are actually a variety of things that I am excited to do this holiday season.

The problem is that no matter how hard I try, I can’t seem to find the time and energy to do them.

I feel run down and worn out. I keep running into obstacles that, if I were in a better mindset to begin with, I would probably be able to overcome. But when I feel this tired, I lack resilience, and tiny obstacles are enough to completely defeat me. Little glitches, mishaps, and irritations keep happening, my brain keeps exploding, and large amounts of time keep being consumed by recovering from the brain explosion, with no possibility for accomplishing anything productive. And then, the inability to accomplish anything productive makes me frustrated, and my mood turns low and negative, and I start to lose hope that I will ever be able to do the things that I want to do. All of which makes me more susceptible to exploding if another obstacle happens.

To give just a few examples, over the past two weeks, my brain has exploded at:

  • After signing up to have my artwork displayed in a gallery, finding out that I would be required to put price stickers on each piece of artwork (I didn’t have any suitable stickers, so fulfilling this requirement would require me to spend money to purchase stickers)
  • Having to fill out a form on a website, but being unable to click on the “submit” button because it was covered by a banner regarding cookies, and the only way to make the banner go away was to check a box indicating that I agreed to the use of tracking cookies, which I wasn’t willing to do because I don’t believe in tracking cookies
  • Designing photo cards and calendars using a photo website and finding out that the shipping charge was significantly more expensive than I had anticipated
  • My Mom asking me if I was losing my voice, a question that didn’t make sense to me because I had lost my voice for a few days due to a nagging sickness, and at that point my voice was finally starting to come back
  • My Dad asking me if I wanted apple pie when I was in the middle of reading an article
  • My cell phone running out of power and needing to be plugged in for 3 hours before it was able to be used
  • Leaving work at the same time as a couple of co-workers and ending up walking to the train with them and riding the train with them, which deprived me of the alone time that I needed in order to decompress after work

I am not sure what came first, the exhaustion or the parade of frustrating little things. Regardless, I feel trapped in a cycle of being so run down that my brain explodes at the tiniest of things, making me even more run down and even more susceptible to my brain exploding.

Lately, it feels like all of my time and energy are spent merely coping with each day. It feels like I have been surviving, not living.

The Christmas cards, which I ended up ordering despite the unreasonably expensive shipping costs, actually came out really good, and I want to actually mail them.

I’d like to get a Christmas tree and decorate it with the historical figure themed ornaments that I’ve collected over the years.

I of course want to put up Christmas lights near my Stonewall Jackson statue, and possibly on the front of my house as well.

I’ve taken photos of the Christmas decorations near where I work, and the Christmas tree at the pond near my house, and I would also like to take photos of the nativity scene at the church near my house.

I would like to see the Napoleon movie, and possibly bring my mini metal version of Napoleon with me (because clearly, going to the movies with a toy soldier for company is a completely normal thing for a grown adult to do).

I want to do more artwork – there are countless ideas for drawings floating around in my brain that I have yet to put down on paper.

I want, possibly, to start a social media account dedicated to historical figures, where I would re-post / share news about new statues being made, photos from reenactments and celebrations, drawings and paintings and AI art of historical figures, and similar things.

All of these things are important to me.

Perhaps most of all, writing is important to me. I want to do more of it, both on this blog and in the form of a fantasy book series and an autobiography / memoir. What has happened to statues and monuments over the past four years has completely traumatized me and altered my life forever. Writing is the way that I process and respond to it. I am also becoming more aware of how my identity as an autistic person is intertwined with the statues. I want to write more about the statues, about my personal experiences as an autistic person, and about how these things intersect. I feel that I have a unique viewpoint and perspective, and my ideas aren’t like anyone else’s. It might sound arrogant, but I feel that my viewpoint, my perspective, and my ideas deserve to be shared, and no one can do that but me. It would not be an exaggeration to say that the ability to write and to share my ideas is necessary for me to have a life that is worth living. It is incredibly frustrating to keep not having the time and energy to do it.

But as you can see from the fact that this blog post exists, I did succeed in finding some time for writing today. So there is reason for hope.

Perhaps the solution is to schedule time on the calendar for drawing and writing, so that my chunks of free time don’t get eaten up by small tasks such as paying the water bill, sweeping the floor, or doing the laundry. This is something that my therapist suggested, but which I’ve struggled to implement. If I don’t have actually have time for both household tasks and writing, which seems to be the case given that doing the household tasks causes my potential writing time to disappear, then the only logical result of scheduling time for writing will be for the household tasks to go undone. And it is kind of important for me to pay my bills, to wash my clothes, and to keep my house reasonably clean. Scheduling blocks of time for certain activities doesn’t magically create more time; it’s just a form of arranging one’s activities differently. If the underlying problem is that I don’t have enough time for everything, my thinking goes, then rearranging things doesn’t really do anything to solve that problem.

Perhaps the solution is to do little bits of writing and drawing whenever I have spare time, instead of having the mentality that it isn’t worth starting unless I have a large chunk of uninterrupted time in which to work.

Perhaps the solution is to be more disciplined and to do little bits of drawing and writing instead of unproductive activities such as reading articles or scrolling through apps.

Perhaps a solution is a combination of these things.

Regardless, I won’t give up hope. I will keep trying to create a better life for myself, a life in which I actually have the time and energy for the things that are important.

bookmark_borderResolve and pain

My chest is tight, my arms and legs feel heavy, and there’s a lump in my throat, although my tears are somehow locked up inside of me on this cold and rainy morning. I am angered and heartbroken, as I have been so many times over the last three and a half years. As always, I struggle to find the words to express why I feel the way that I do, and why exactly the things that people have done are so horrible and have had such a profound negative impact on me.

Angela Douglas, the executive director of the Jefferson School African American Cultural Center, is the cause of the latest attack of agony, but she is just one among many. Again and again, more times than I can count or my brain can comprehend, people who think and act similarly to her have caused similar agony attacks, filling the past three and a half years with relentless, unbearable, indescribable pain.
I have no choice but to go on. I know that the actions of Douglas and those like her are horrible, and I know that I am right to be so upset, even if words are inadequate for the task of providing a full explanation. I believe that I am a good person and that what I am doing is important. I know that I am morally right and that Douglas is morally wrong.

But I am in so much pain.

And there is, seemingly, nothing that I can do about it. I am only one person. I do not have the power to stop people like Angela Douglas from committing their hideous, sadistic, sickening actions. Our society has decided that actions like these are acceptable, and that there are more important things to condemn, more important things to fight against. I disagree with this stance as strongly as it is possible for a human being to disagree with anything, but I have no power to convince society to adopt my perspective. All that I can do is to continue being a good person, continue doing what is right, continue doing what I can to stand up for the historical figures.
I don’t believe in hacking historical figures’ bodies to pieces, sawing their heads off, cutting their faces off, and burning them in a furnace.

I believe in honoring them, celebrating them, protecting them, and keeping them alive.
And that is what I will try to do, with the humble amount of resources and power that are available to me.

If other people don’t agree with me, if other people don’t find this important, then that is a negative reflection on them, not on me.

bookmark_borderA poem (of sorts)

Crickets chirp quietly

And leaves waft down from the trees.

Branches cast shadows

Through the moonlight that bathes the yard.

The serene oasis

Stands in sharp contrast

With the atrocity that took place earlier

Somewhere far away

Yet somehow close at the same time.

My statue waits for me,

His bronze skin glinting in the soft light.

Dead leaves crunch under my feet

As I go to tell him what has befallen his comrade

But there is no need;

He already knows.

“I don’t have to tell you, do I, Stonewall? You can feel it. You know what happened. Your heart is sad, and mine is, too. We will grieve, and mourn, together. You are the one thing that makes me feel just a tiny bit better, that makes this pain bearable. Things like this, are why it is so important that you exist. Things like this are why I decided to bring you into the world.”

“Don’t worry, they can’t hurt you here. I own this land, and I will protect you. I will keep you safe.”

“I’ll try to get some sleep tonight, and I hope that you can, too. See you in the morning.”

Excruciating pain

Serves also as a reminder

Of the path that I’ve chosen.

This land is mine,

A world that bigotry, intolerance, and cruelty cannot touch

In which a little statue lives

Safe, protected, beautiful, magnificent

Who wouldn’t have been born otherwise.

10/26/23

bookmark_borderAtrocity

Disgusting.

Cruel.

Vicious.

Intolerant.

Immoral.

Heartbreaking.

Again and again I’ve tried to find words adequate to describe actions like the ones that took place in Charlottesville today, and again and again the English language comes up short.

Acts like these have taken place so many times over the past three and a half hellish years that I cannot keep track, my brain cannot comprehend the overwhelming magnitude of what has happened.

Yet again, the winning side of the war decides, for some inexplicable reason, to beat up on the losing side.

Yet again, the strong, powerful establishment decides to torment the rebels, the dissenters, the underdogs, all while preposterously claiming that they are somehow disadvantaged and oppressed.

One meager statue representing human diversity, representing dissent, representing being different from the norm, amidst a sea of essentially identical statues all representing mindless conformity, deemed unacceptable in their eyes.

Having relentlessly criticized my clothes, my hair, my shoes, my socks, ridiculed the way that I speak, bullied me because I like different music and movies and books than they do, none of that was enough for them. My special interest – the one thing that makes my life worth living – had to be destroyed too, the public spaces of our country redesigned to ensure that I receive the message that I am hated, that I am unacceptable, that I am sick and deviant, that I am not welcome to exist.

I am deemed unworthy of even a single work of public art making me feel accepted, making me feel included.

Yet again my body, mind, and soul are consumed by agonizing, unbearable pain.

There are no words that can fully convey how much I hate the people – and I use that word loosely – who did this.

They do not hold the moral high ground.

They forfeited any claim to it a long time ago.

They deserve the most severe punishment possible.

But even that would not be enough, because no punishment could possibly be as severe as the punishment that they have inflicted on me – an innocent person who has done nothing wrong – through their actions.

bookmark_borderColumbus Day 2023

For the past four years, for reasons that I probably don’t need to elaborate on, Columbus Day has been an occasion for turmoil and emotional upheaval. 

The day started out with the promise of more of the same. The never-ending list of atrocities, of heartless attacks against the thing that makes my life worth living, was weighing on me as it so often does. The horrific images and vicious words made it difficult to sleep, as they so often do, and I woke up later than I planned, with my brain feeling foggy and my limbs feeling like lead. I missed the bus, and after walking to the train station, with ice cold wind ripping at my clothing and sunlight shining directly into my eyes, I missed the train and had to wait a long time for the next one. 

Finally, I arrived in Boston with flowers and a note. My plan was to visit Christopher Columbus, say hello, and take a few photos of him. Then, if I couldn’t physically go up to him to leave the flowers and note, which I figured would probably be the case because he is located at the Knights of Columbus building which is enclosed by a fence, I would head to his former location, where a heartbreaking empty pedestal still stands, and leave the flowers and note atop the pedestal. I wasn’t certain whether I even wanted to go through with this plan, because I was running so far behind schedule, and because seeing the empty pedestal and the people happily going about their business around it, is just so painful. 

To my surprise, the gate was open. There were a bunch of men standing around in the parking lot, who I assumed to be members of the Knights of Columbus. So I summoned the courage to walk through it and go up to them. 

“Sorry to interrupt,” I began, “but I’m a big fan of your statue, and I was wondering if I could leave some flowers for him.”

One of the Knights responded in the affirmative and even offered to take my picture with Christopher. 

I left the note and the flowers, and wished them all a happy Columbus Day. 

I am glad that the Knights were so kind and welcoming, and also that I happened to stop by while they were there, giving me an opportunity to leave my gift for Chris. 

Chris means so much to me, that it is strange to think that I had never actually gotten this close to him before, or had my picture taken with him. 

At this moment, my heart is full. 

Happy Columbus Day.