Today, my heart hurts. I feel exhausted, drained, and demoralized. I feel weak and tired, my brain feels dull, foggy, and slow, and my body feels heavy.
I have not been blogging as much as I would like. For the entire month of September, I did not blog at all, and so far in October, I have done so only sporadically. This is beyond frustrating, because there are so many thoughts in my brain that I want and need to express. But I can’t. I simply do not have the time, or the energy. Things have not been going well for me. I have been experiencing autistic burnout for four and a half years, and for the past two and a half months it has been particularly severe.
The Olympics marked the beginning of this bad stretch of time. Sports have traditionally been one of my biggest special interests, so this was something that I had been eagerly anticipating. But NBC’s coverage decisions meant that I was unable to watch all of the coverage that I needed to. There was simply too much of it. And so what I thought would be both a challenging and exciting experience turned into a nightmare of overstimulation, information overload, mental exhaustion, and sleep deprivation. I managed to alter my goals and mindset regarding the Olympics, allowing me to endure the experience. This was extremely difficult for me as an autistic person, and is something that I am proud of myself for doing. But being proud of oneself for accomplishing something is not the same as having a positive experience. The Olympics turned out to be something that I needed to endure, rather than something enjoyable and rewarding. And that is not great, to put it mildly. Not only was I subjected to an inordinate amount of stress and exhaustion, but I was denied the rewarding experience that I was picturing and expecting.
Also starting around this time, I began to feel vaguely physically unwell, which continues to this day. I have been suffering from a runny and stuffy nose, sore and scratchy throat, cough, itchy and watery eyes, headaches, earaches, and low-grade fevers. These symptoms come and go, waning and giving me hope that they will finally be gone, only come roaring back the following day. These symptoms haven’t reached a level of severity that would cause me to miss work or cancel any activities that I had committed to, but they have caused me to be constantly miserable. It has really taken a toll on my mental health and quality of life.
Throughout August and September, I also had an inordinate amount of difficult interpersonal situations put onto my plate to deal with. Texts and messages that I didn’t know how to respond to, uncomfortable phone calls that I had to make, requests for social get-togethers that I knew I wouldn’t be able to do but that were excruciatingly painful to say no to. I have made the decision to quit socializing, because friendships simply don’t work for me given my autism and history of trauma involving interpersonal situations. But people continue to ask me to socialize with them, and every time they do, the wound is ripped open and I essentially am forced to make the painful decision to quit socializing anew. These situations have been emotionally exhausting and have used up a lot of mental resources.
Because of my overall level of exhaustion, I have been sleeping very late, even when I go to bed relatively early. As a result, I essentially don’t have time to do anything other than getting ready for work, and working. I don’t have time to take walks, I don’t have time to run errands, and I don’t have time for writing. Such an enormous amount of time is spent sleeping, that there is no time for anything else. Despite this, I wake up exhausted, and it is painful to wrench myself out of bed. In other words, even this enormous amount of time spent sleeping is not enough. Most likely, no amount of sleep would be enough to make me feel refreshed and well-rested. Normally, I enjoy walking around the pond near my house, in the woods, and in the center of town, looking at the beautiful fall foliage and photographing it. But I haven’t really had time to do this. The fall season is passing me by, and I’m not able to enjoy or experience it in any meaningful sense. This is a depressing way to live. In fact, I would argue that it does not quality as truly living, but merely as existing.
I’ve also had numerous workdays get screwed up. My work is usually a source of stability and routine. I can focus on something concrete, such as ringing up customers’ groceries at the cash register, bagging the groceries, collecting shopping carts in the parking lot, or stocking groceries in a section of the store. But I’ve been subjected to various instances that have turned my job into a source of dysregulation and chaos. On multiple occasions, I’ve been trapped with slow-walking and talkative co-workers during the commute home, causing me to miss the train and preventing me from doing Italian lessons on my phone. One night, the staff was asked to stay an hour late (not a problem in itself) and a co-worker pressured me into getting a ride home with another co-worker rather than taking the train as I usually do (apparently thinking, for some reason, that the fact that it was an hour later made it unsafe to take the train). Another night, the manager didn’t give clear instructions, so I didn’t know what section of the store I was supposed to work on or when I was supposed to stop. And another night, too much frozen food was ordered, so I ended my shift by pushing boxes of food with all my might in a (futile) attempt to force them into the completely packed walk-in freezer.
Worst of all, when my manager was explaining how the Columbus Day holiday would affect projected sales, one of my co-workers interrupted to “correct” the holiday name to “Indigenous Peoples’ Day.” When my manager responded that people could call the holiday whatever they wanted to, another co-worker interjected, “As long as you don’t call it Columbus Day! Anything but Columbus Day!” If you know anything of my feelings about Christopher Columbus, you won’t be surprised to learn that this caused me to be flooded with excruciating, agonizing pain. And it brings me to the next cause of this recent exacerbation of autistic burnout: Columbus Day.
Given that I love Christopher Columbus more than anything in the world, Columbus Day should be the best day of the year for me, or at least a better than average one. But this year at least, it was horrible. I attended and sold my artwork at an Italian festival, which should have been fun and exciting. However, I had to stay up late the night before in order to get my work ready, it was cold, rainy, and windy (all things that severely bother my sensory sensitivities), and a friend came by to sit at my table and help break it down at the end of the event (despite the fact that I had previously told her, as nicely as possible, that I did not need or want her help). This all amounted to an uncomfortable, angering, and draining experience. Instead of celebrating and honoring the man I love, I spent the day coping with an experience that was exhausting, out of control, and chaotic.
Plus, as has been the case every year starting in 2020, various people, companies, and organizations used the occasion to attack Columbus, and therefore myself. I am too mentally exhausted and in pain to describe these things in detail, but the culprits include various cities and towns, American Gril (yes, the doll company), and every museum and park in Boston. Every time I see the words, “Indigenous Peoples’ Day,” I am filled with agonizing pain. There are no words that can adequately express the hurt of seeing other people’s perspectives validated, suffering acknowledged, cultures celebrated, and voices heard, while my perspective is dismissed, my suffering ignored, my culture shamed and condemned, and my words ridiculed. No matter how hard I try, I cannot force others to listen to my ideas, understand my point of view, or empathize with my pain. When you combine this with all the other things that I’ve described in this blog post, I feel beaten down. My spirit is crushed. So many things that used to give me pleasure have been taken away, contaminated, ruined. There is almost nothing that I can direct my time, energy, or attention towards that does not cause excruciating pain. It is difficult for me to see a path forward.
I am trying to keep the faith. I am trying to remind myself that I have felt this way before and have survived, and have returned to a state of happiness again. I am trying to remind myself that at some point in the future, my body will have more energy, and my brain will once again feel sharp. But right now, that isn’t the case. Right now, everything feels heavy, dark, and hopeless. Right now, everything hurts.
